Saturday, June 25, 2011

Father's Day and other updates







Three weeks ago we took dad to the emergency room for a high fever; he was admitted to Huntsman after 7 hours of waiting in misery. Finally, once settled in his room, he got up in the middle of the night to use the restroom and when he came back to his bed, the brakes on his bed were not locked so he fell to the floor hitting his head and hip on the corner of the table. He got a pretty good gash on his head and has obviously been suffering from much more severe pain since then. The doctors say that there is nothing they can do to fix the problem, the only thing they can do for him is prescribe more pain medication. Dad doesn't like to be on the pain meds because he feels like he's too out-of-it when he is with us but it is so hard to see him suffer even more than he was already.
As Robert wrote before, dad's doctor suggested that he go on a two week trial with hospice to try to make him more comfortable but they discharged him before the two week trial because he had a transfusion which is not permitted if you are on hospice, but he would rather keep going to the hospital and fighting to stay alive then just stay home and be comfortable.
He did go in for his routine visits this week and had his platelet transfusion and will go in again next week. They say that he may be getting more tired and feeling more pain in the next little while because the white blood cells are taking over. He is still our amazing dad and still has some fight left in him.
We had a wonderful Father's Day with him which he was very happy to be able to celebrate. He was feeling so sick the night before that he wasn't sure he would make it. Now when I tell him I'll see him tomorrow, he always replies "that's my goal!"
Thank you dad for your strong spirit and endless love and to mom for being the best nurse he could ever hope for! We love you both so much!

Tuesday, June 14, 2011

Next Step




Short update,
A few things changed recently. Dad was hospitalized last week for fever. He was started on antibiotics, and is still getting them at home. He is becoming confused from time to time and that has his doctor and family concerned. This could be due to infection, pain medication or spread of leukemia cells among other causes.
His team at HCI are worried that he has reached the point where complications may be mounting and controlling his pain and confusion will be difficult.
He is starting a trial of hospice so he can have a nurse on call 24/7 and avoid the ER.
His Dr. really enjoys dad and the family and is concerned about his ability to offer more help. he hopes this will provide more help and care.
This team at Huntsman has been great to dad and our family and are still available to meet with us but would like to see if hospice nursing can improve their capacity to help.

- Posted using BlogPress from my iPhone

Sunday, June 5, 2011

Happy Birthday Daddy!






Dad turned 63 on June 3rd, a day we are all so grateful to have been able to celebrate with him! Mom has been planning on throwing him a big birthday party since the beginning of the year and never gave up faith that he would make it to the day. She has worked so hard to put it all together and I must say it was a wonderful success! We had lots of food, dancing, more food and fun!
Thank you to everyone who was able to join us and everyone that took the time to make so much great food or to travel such a long way. Mom's cousin, Rosie, even flew in from Australia for the special occasion and has been such a great help to all of us!
Dad is doing good, he's still going in for his weekly transfusions and platelets and still feeling pretty miserable. Although his leukemia is not in remission, he has come so far even with the odds against him and no chemotherapy. We are so grateful that he is still fighting and was able to celebrate his birthday and many more to come! It just shows you how far love and faith can take you!
I'm sorry I haven't updated in awhile and didn't sent out a message earlier to invite everyone to come celebrate with us. I'll try to keep up better:)
Thanks again for all the prayers, they are certainly working!
Love you all and I'll update again later.